Katie Thomas

Midnight Mountain Half Marathon!

Fundraising for Alex, The Leukodystrophy Charity
£810
raised of £1,000 target
by 23 supporters
Donations cannot currently be made to this page
In memory of Jonathan King
Alex, The Leukodystrophy Charity

Verified by JustGiving

RCN 1106008
We provide support to families affected with leukodystrophies

Story

On June 23rd 2018, Georgie, Ash and myself are running a half marathon to raise money for ALD Life in memory of our uncle Jonathan King. Our uncle sadly passed away at the end of last year after a courageous fight with a rare genetic disease, adrenoleukodystrophy (ALD). It was absolutely heartbreaking to see him decline. He was one of the kindest, most generous people and is missed every day. 

As one of the longest surviving victims of this disease we thought it was only right to mark his memory with something that would pay tribute to his determination and strength. Something that would be a real challenge. A half marathon up a mountain, the highest peak in South Wales,  in twilight hours seemed rather fitting. 

Set in the Brecon Beacons, the course will take us through forests, over streams, past waterfalls and up mountains. It's certainly no ordinary half marathon. It even includes part of the 'Fan Dance' which is an infamous run taken on by potential members of British Special Forces as part of their selection process. So if you could spare a few pennies, for what we're sure will be a somewhat painful experience, please do! 

All money will be donated to ALD Life which is a patient support group and registered charity for patients and families with ALD. The charity is not only providing practical support, but also advancing medical research to find better treatments. 

Thank you,

Georgie, Ash & Katie 

xxx


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About the charity

Alex, The Leukodystrophy Charity

Verified by JustGiving

RCN 1106008
Established in 2004, Alex TLC is the only charity in the UK that provides invaluable support and information for anyone with a leukodystrophy, their families, and carers.

Donation summary

Total raised
£810.00
+ £166.25 Gift Aid
Online donations
£810.00
Offline donations
£0.00

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