Mollie passed away in the ICU of Queen Elizabeth Hospital on Wednesday 29^th of April 2015 at the age of 20. In place of flowers at Mollie's funeral, the family have asked that you donate to this wonderful charity.

Mollie was born with the ‘unique’ and rare genetic disorder, Alagille Syndrome. Alagille Syndrome is a genetic disorder which mainly affects the liver, heart and kidneys. Since birth, Mollie dealt with numerous medications and had several surgeries including open heart surgery at the age of 2. At age 8, Mollie was prepped for a liver transplant from her Dad as a living donor. However, Mollie’s condition improved and stabilised and she was able to live a relatively normal life supported by medication throughout her teens.

However, over Christmas 2014 the family began to notice that Mollie’s eyes and skin had started to turn yellow, a tell-tale sign of her liver disease worsening. At the beginning of January, it was confirmed that a small lump which had been present in Mollies liver for a while had grown at an unprecedented rate and had practically outgrown her liver. In February 2015 it was confirmed that Mollie had liver failure and at the end of March she was placed on the transplant list. At the beginning of April 2015 Mollie was admitted to Queen Elizabeth Hospital in Birmingham and temporarily removed from the active transplant list due to complications.

After a heartbreakingly quick decline in the ICU, Mollie faced her final battle head on with her wonderfully sassy stubbornness and determination intact until the very end. She didn’t lose any battles; she won a million tiny ones and left us with grace and peace when the time was right for her.

 

Like a firework, our beautiful Mollie was sadly not destined to sparkle for very long, but when she did she brought nothing but love, warmth and a brilliant light as bright as the sun.  In memory of the marvellous Mollie, the family are raising funds for The Children's Liver Disease Foundation. The foundation raises funds for research into childhood liver disease and provides family support to those affected including arranging meet ups and days out for children affected by liver disease.