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Myotubular (centronuclear) myopathy is a rare genetic muscle condition affecting mostly boys from birth. It causes profound muscle weakness, dangerously affecting the muscles that control breathing & swallowing. We fund research but also raise awareness & we support affected families and patients.
Myotubular Trust
contact@myotubulartrust.org
Myotubular Trust Registered charity number 1137177
"In memory of Ian Lennox."
Anonymous donated
£20.00 + £5.00 Gift Aid
"In Ian Lennox's memory with love from Trisha Hayman and Liz Harman"
Elizabeth Harman donated
£100.00 + £25.00 Gift Aid
"In memory of Uncle Ian, Captain Ian Lennox xx"
Caroline, Nigel, Stephanie, Daniel and Emma donated
£50.00 + £12.50 Gift Aid
"In memory of Captain Ian Lennox"
Melanie & John Spring donated
"In memory of Captain RN (Rtd) Ian Bruce Lennox. May he rest in peace x"
"In memory of Capt.Ian Lennox"
