PLEASE SPONSER THE HYDE PARK WALK  ON THE 23rd of August TO RAISE MONEY FOR ACTION DUCHENNE.

We will be at Hyde Park on the 23rd for a 2 hour walk to raise money for Action Duchenne. 

This is my friend's message about his son and the disease that has overwhelmed his family.


This is Raul my beautiful happy "normal" 5 year-old son who was recently diagnosed with Duchenne Muscular Dystrophy, a horrific muscle wasting disease for which there is currently no cure or treatment.

Raul has a fantastic appreciation for his life, family and friends. He loves to swim, ride his bike, run around with his friends or just play with his toy cars. He knows that his muscles are weak but he has no idea of the devastation that the doctors have predicted for him. To our astonishment, we were told in no uncertain terms that these are Raul's best years. From the age of 7, Raul will become progressively weaker. By the age of 11, he will no longer be able to walk. His upper body muscles will continue to waste away until his heart muscles or respiratory muscles cave in. It is said that children with Duchenne die in their late teens or early twenties.

A genuine treatment could be round the corner. There are leading doctors and scientists in the field who in the last 20 or so years have gained a great understanding of the path that the disease takes and have made great advances. These amazing people offer Raul and other children in Raul’s position hope. However, their work is progressing at a snail’s pace in the context of Raul’s life due largely to gross underfunding.

I am convinced though that with your help, we can change Raul’s prognosis. There is a real chance of finding a cure or a long-term treatment for Duchenne not just during Raul’s life but before he has to face the prospect of never being able to walk again.


Please help. Please donate generously. Please also ask all your friends and family to do so too.

Donating through Justgiving is quick, easy and totally secure. It’s also the most efficient way to sponsor me: Action Duchenne gets your money faster and, if you’re a UK taxpayer, Justgiving makes sure 25% in Gift Aid, plus a 3% supplement, are added to your donation.

So please sponsor me now!