Adam Russell

Adam's fundraiser for RETT UK

Fundraising for RETT UK
raised of £200 target
by 13 supporters
1 Million Steps for Retts, 18 July 2023
In memory of Grace Elliott

Verified by JustGiving

RCN 1137820
We change lives and give a brighter future to those affected by Rett syndrome. Now.


Rett syndrome is devastating for a family. Having suspected something was not quite be right,suddenly they are told their child will be profoundly disabled, with multiple health problems including epilepsy, a curved spine, breathing problems, feeding difficulties and gut/bowel issues.

Rett UK is there to pick up the pieces; emotional support, high quality, accurate advice & information, advocacy, reducing isolation, empowering families, building emotional resilience and helping the person with Rett syndrome live a life worth living.

My niece was diagnosed with Rett Syndrome when she was a few months old and now aged 3, she is unable to do the things we take for granted. Incorporating my summer step challenge with work, which started on 3rd July, I am aiming over this 8 week period to hit 1 million steps for Rett UK, as my niece may never be able to hit that many steps.

I will provide weekly updates on how much I have done, and how many are left.

Please support as best as you can.

About the charity


Verified by JustGiving

RCN 1137820
Imagine being told your toddler you thought was healthy, but perhaps slow to progress, in fact had a rare and devastating disability that would leave them needing lifelong 24/7 care. Rett syndrome changes lives irrevocably. With your support Rett UK is there from the beginning. #ToKnowHerIsToLoveHer

Donation summary

Total raised
+ £55.00 Gift Aid
Online donations
Offline donations

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