Fundraiser for SCN8A UK & IRELAND

Three Peaks Geeks is raising money for SCN8A UK & IRELAND
In memory of Ben Clay
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Yorkshire 3 Peaks Challenge · 18 May 2024

SCN8A UK & IRELAND IS DEDICATED TO IMPROVING THE LIVES OF CHILDREN AND ADULTS WITH SCN8A THROUGH CONNECTING AND SUPPORTING FAMILIES, FUNDING MEDICAL RESEARCH AND RAISING AWARENESS.

Story

Thanks for taking the time to visit our JustGiving page.

In March 2022 we lost a great friend in Ben Clay. Ben was truly unique and the outpouring of love and support shown following his passing was a real testament to the brilliant man he was. Ben was a passionate family man and took great pride in sharing the joys of his children, Isaac and Tilly.

Tilly was born with a rare genetic disorder and in 2021 Ben set up a charity - SCN8A UK & Ireland - to provide support to children and adults with SCN8A and their families. The charity is embarking on a huge fundraising effort this year to support a European research project with the aim of providing effective treatments for SCN8A.

So, what started as just an idea over lunch (and a little bit of wine), has now become a reality, and the 8 of us have set about training for the Yorkshire 3 Peaks Challenge. This is a huge challenge for us, with over 1600m of ascent and 39km distance, all to be accomplished in 12 hours.

Please dig deep and help continue Ben's amazing charity work.

Thanks!

Sandy, Anna, Rachel H, Jo B, Karen, Renea, Jo A, Rachel G

Donation summary

Total
£11,055.00
+ £2,271.09 Gift Aid
Online
£11,055.00
Offline
£0.00

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