Story
Melanie Slater, Phil Nightingale, Macken Gosal, Aleksandra Jaworska, Scott Straughan, Peter Oxford, Leigh Furnival, Dan Parkin
A dedicated team is taking on the Peak Geek Hiking National 3 Peaks Challenge on June 28, 2025, aiming to conquer Ben Nevis, Scafell Pike, and Mount Snowdon in just 24 hours. This challenge is not just a test of endurance; it is a heartfelt mission to support those affected by Spinal Muscular Atrophy (SMA).
One individual, Mur Hawk Slater,who inspires this effort has faced unimaginable challenges since being diagnosed with SMA at just 13 months old. Initially given a prognosis of only surviving until the age of 15, this remarkable person has defied the odds and is now 26. Throughout their life, SMA UK has been a beacon of hope, providing essential support and information about living with this condition.
The journey has not been easy. After undergoing a grueling 13-hour surgery at the age of seven due to severe spinal complications, they spent nearly two weeks in intensive care—a traumatic experience for both mother and child. As time passed, their condition deteriorated significantly, leading to a reliance on constant care for daily needs.
https://www.fight.tv/post/mur-hawk-slater-defying-odds-finding-hope-in-one-championship-community
SMA affects approximately 1 in every 25,000 individuals in the UK. The work done by SMA UK is vital; they fund research into treatments that can alleviate some symptoms and provide life-saving drugs that were not available until later in life for those affected. Our hero wishes to ensure that other children receive help sooner so they can avoid similar suffering.
For nearly four decades, SMA UK has championed the rights of those impacted by SMA, advocating for access to the best care and ongoing research. They offer emotional support and practical advice to families navigating this challenging journey and distribute free multisensory toy packs for infants diagnosed with SMA.
We invite you to join us in supporting this noble cause. Your contributions will help fund critical research and provide necessary resources for families affected by SMA. Together, we can make a difference in the lives of many who are facing this condition.