I have Cavernoma, it it typically characterised by a malformation of the blood vessels in the brain, spinal column or other area of the body.

It is a condition that affects 1 in 600 people.

I have a rare genetic version, CCM1+, which sees multiple malformations form in the brain over time. Which can, and has, lead to secondary debilitating symptoms for patients such as epilepsy or chronic fatigue or chronic migraine, along with a host of cognitive and motor function issues.

I had a bad brain bleed before I knew what this condition was or how it would go on to affect every aspect of my life. I was only 42 when I got this terrifying news with two kids who very much still depended on me.

The Cavernoma Society were there with support, information and a community when I needed it most and felt most lost.

Aaron Gardner, my children’s Dad, has kindly offered to run the London Marathon in support of The Cavernoma Society in April 2025.

We want to raise awareness and vital funds so others can experience their help in their worst moments too.

The society has grown to include Ireland, NI and other European members all working for a common goal.

The Cavernoma Society has been set up by those with cavernoma to help those affected by it. We are a volunteer-run charity supporting friends, carers, family, and patients affected by cavernoma. This rare neurological condition affects 1 in 600 and it's our mission to provide support and research into the condition, thus improving lives.