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Ash Robb, Ed Fancourt, John Davis and Steve Lightfoot are running the Leeds Abbey Dash to raise money for Cure INAD UK.

Steve's daughter Zoe lives in Leeds and has been diagnosed with Infantile Neuro Axonal Dystrophy (INAD). It is a terrible life limiting condition. Children with INAD have a life expectancy of aged 5-10 years. Cure INAD UK has been set up by Zoe's friends and family to raise funds to find a cure. Currently the charity is fundraising for the pioneering gene therapy programme for INAD at University College London (UCL). Currently the charity is working to help raise funds towards the production of the viral vector required for the gene therapy treatment, which would represent a significant milestone on the path towards a potential human trial. This could help bridge the gap between research and treatment. Please help to progress this gene therapy for INAD to clinical trial and give hope to all families with INAD, ANAD and PLA2G6 related dystonia-parkinsonism.

More information is available at www.cureinaduk.org

Thank you so much to Steve, Ed, Ash and John for running for Cure INAD UK. Thank you for sponsoring them, every donation helps. 100% of all donations to the charity is paid out in grants for research.

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