I was diagnosed with NF Type 1 at 3 years old back in America after doctors noticed my café au lait spots, I was also diagnosed with autism at the same time. I’m fortunate to not have too many complications but it has left me with a benign brain tumour. I have many friends I met through having NF who haven’t been as lucky. With many of them have to spend large amounts of their childhood in hospitals and having surgeries. I’m not only running for myself, I’m running in memory of my friends, Bryce, Nick, and Evan, and in honour of Bee, Liza, Claire, and Dylan back in the USA.

I'm supporting Nerve Tumours UK because their mission means a great deal to me. They provide crucial support to people living with the Neurofibromatoses- the conditons that cause nerve tumours.

They are dominant genetic conditions, which means that they can be passed on in families from one generation to the next through genetic inheritance. Similarly, about half of nerve tumours cases recorded have no previous family history of the condition. In other words, it can occur totally “out of the blue”.

Please help me bolster their support.

What are you helping fund?

£10 funds a Schools Advisory Information Pack

£25 funds Nerve Tumours UK platforms & e-newsletters, essential updates for the community, for one month

£60 funds an initial and follow up call from the National Neurofibromatosis Helpline

£145 funds a School Advisory Meeting with parents & associated medical practitioners

£150 funds a Home Visit, crucial for newly diagnosed de novo cases

£1000 funds a part-time Specialist Neurofibromatosis Nurse for approximately one month