Last year, our family's world was turned upside down when we suddenly lost Isaac, just 11 years old, to the rare condition Achalasia.

Most people have never even heard of it until it touches their lives, and we don't want others to go through the same heartbreak.

I’m running my first full marathon in Manchester, and I want to use this moment to honour Isaac by raising awareness and vital funds for Achalasia Action. Every step is for him and for the families who are facing this condition.