After 7 long years of battling for answers, the endless tests, scans, referrals and appointments that just seemed to continually go back to square one, Adam’s mum Heather finally got a diagnosis in 2025 for Multiple System Atrophy (MSA), a rare but devastating condition that affects around 3,300 people in the UK.

MSA is a progressive neurodegenerative disease that gradually damages nerve cells in the brain, impacting the body’s ability to control movement, balance, speech and vital automatic functions such as blood pressure, bladder control, breathing and swallowing.

For anyone who knows Adam you will know what a truly special bond he shares with his mum, and for anyone who knows Heather you will know what a truly special person she is.

Adam turns 40 on 24th April and until then, I hope to keep this a SECRET. I also hope to raise not only vital funding for the MSA Trust, but also awareness of this heartbreaking condition, with Heather in mind and on behalf of Adam for his birthday skydive. PS he’s scared of heights!

I’ve set a challenging target of reaching £1000, so any donation you could give would be so gratefully received

Together we can help fund vital care, equipment, therapy, and the research that gives families just like ours real hope that one day MSA will be treatable, or even preventable.

Thank you ❤️