Aimee's fundraiser for INFACT

Aimee Mendel is raising money for INFACT
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Great Manchester Run 2024 · 26 May 2024 ·

INFACT are a registered Charity in the UK representing children and their families that have been born with cognitive and physical disabilities caused by anti convulsant medicines whilst taken in Pregnancy such as Sodium Valproate. These disabilities come under umbrella terms of Fetal Valproate Spectrum Disorder and Fetal Anti Convulsant Syndrome. Currently there is very limited help or recognition for these syndromes, and one of the main aims of our charity INFACT is to directly address this problem by Campaigning for full redress and support for affected people. Our work consists of : Raising awareness of FVSD & FACS within Parliament and keeping it on the Political Agenda Working with Governing Bodies such as Medicines Healthcare Regulatory Agency, Department of Health, World Health Organisation , NICE and other organisations ensuring prescribing information of Epilepsy medicines is as up to date as can be Advocating and helping parents apply for EHCP so children have the correct support in schools & colleges

Story

Thanks for taking the time to visit my JustGiving page.

Having decided to massively challenge myself I decided to run the Manchester 10K to raise money for In-FACT (Independent Fetal Anti-Convulsant Trust). Doing the run with me will be my two friends Lyn and Jemma.

The charity was started by two mums whose children were affected after anti convulsant medication continued to be prescribed to them and other mums with epilepsy (without giving any warning) throughout the entirety of their pregnancy. The government regulators withheld the information about the risks as they did not wish to cause ‘unnecessary stress’ and for many years they have denied culpability. It has now become apparent that due to this medical mistake it has sadly led to significant disabilities both physical, mental and development for the children who were subsequently born. Some of these children will require lifelong care.

The charity is massively under resourced and desperately needs funds to help further research, seek legal advice as well as support affected families. It is vital that we continue to campaign for our children’s right to be heard and supported.

Anyone who knows me knows that I am by no means a natural runner, and this is an incredibly hard challenge that I have set myself. However, I am happy to face my fears as I am passionate about raising awareness and much needed support not just for my daughter but for all the amazing children affected.

I am so grateful for any support you might be able to offer all of which will help towards positive change . Thanks so much, Aimee.x

Donation summary

Total
£1,250.54
Online
£1,250.54
Offline
£0.00

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