Your friends are fundraising. Don't miss out, opt in.

INFACT charity

Aimee Mendel is raising money for INFACT

AJ Bell Great Manchester Run 10K 2026 · 31 May 2026 ·

INFACT are a registered Charity in the UK representing children and their families that have been born with cognitive and physical disabilities caused by anti convulsant medicines whilst taken in Pregnancy such as Sodium Valproate. These disabilities come under umbrella terms of Fetal Valproate Spectrum Disorder and Fetal Anti Convulsant Syndrome. Currently there is very limited help or recognition for these syndromes, and one of the main aims of our charity INFACT is to directly address this problem by Campaigning for full redress and support for affected people. Our work consists of : Raising awareness of FVSD & FACS within Parliament and keeping it on the Political Agenda Working with Governing Bodies such as Medicines Healthcare Regulatory Agency, Department of Health, World Health Organisation , NICE and other organisations ensuring prescribing information of Epilepsy medicines is as up to date as can be Advocating and helping parents apply for EHCP so children have the correct support in schools & colleges

Story

Thanks for taking the time to visit our just giving page

INFACT charity was started by two mums whose children were affected after harmful anti convulsant medication was prescribed to them and other mums with epilepsy (without giving any warning) throughout the entirety of their pregnancy.

The government regulators knowingly withheld the information about the risks as they did not wish to cause ‘unnecessary stress.” To women. The government have accepted responsibility for the harm caused to children

This negligence has sadly led to significant disabilities both physical, mental and developmental for the children who were subsequently born. Some of these children will require lifelong care.

The charity is massively under resourced and relies heavily on donations to continue to support and advocate for the children affected.

We are a small group of women who are mixed abilities some of us haven’t ever run a 10km but we are keen to raise awareness and hopefully some funds for our chosen charity.

Thank you for helping 💜

Donation summary

Total
£697.00
Online
£697.00
Offline
£0.00

Charities pay a small fee for our service. Learn more about fees