I’m taking part in the Edinburgh kiltwalk this year to raise money for muscular dystrophy uk and my niece Miley’s fund.

As most of you know Miley was diagnosed with ulrich congenital muscular dystrophy at just 4 months old, which has an effect on her mobility. Miley’s condition has caused a curve in her spine which also impacts her respiratory system - one of her lungs is compressed making it difficult to work at full capacity. Miley’s condition also effects her ability to eat and drink making it difficult to get the nutrients she needs to gain weight, as a result of this Miley is currently fed through a nasal gastric tube and is on the waiting list to have a peg tube fitted.

Every 4 months Miley has spinal reviews, she currently wears a brace to try and slow down and correct her scoliosis, however she will probably require spinal surgery when she is old enough.

With Miley’s condition it is a worry when she becomes unwell, especially if she gets a chest infection. Due to her weakened respiratory system she less likely to fight off any illness she may catch. Miley has previously been admitted for stays in the hospital for this exact reason, requiring the urgent need for CPAP and high flow oxygen.

At Christmas time Miley started walking with the support of a walking frame. She can also now walk for short distances, however does require constant supervision as she is more prone to falling. We are so proud of our girl and everything she continues to overcome, she truly is smashing this life and I can’t wait to watch her grow even more.

20% of all funds raised will be put directly into Miley’s family fund which will help to fund any extra support/equipment Miley may need.

Muscles.

We use them to move.

Walk, eat, smile, cry.

Pump blood around our bodies.

To breathe in and out.

Our muscles matter.

By fundraising for Muscular Dystrophy UK, I’m helping to fund world-class research into effective treatments, and life changing support for the 110,000 people in the UK living with a muscle-wasting condition.

All donations and support are greatly appreciated. Thank you!