In 2012, my sister Nikki was diagnosed with a craniofacial AVM. However, due the rarity of the condition, understanding of it was limited, leaving few, if any known treatment options. As a result, Nikki's AVM journey has been marked by a staggering series of approximately 100 major surgical procedures – each undertaken to simply manage and control the unpredictable nature of her illness.

That's why my family established The Butterfly AVM Charity - to drive fundraising initiatives that could pave the way for transformative, potentially life-saving research.

On Friday August 18th, I am walking a London half-marathon with some of my colleagues to raise vital funds for the charity and contribute to the amazing research that is currently going on. Any donation regardless of the size is hugely appreciated and will help AVM sufferers all over the world get one step closer to finding that elusive cure.

Thank you!