Inspired by the life of Alexandra Murphy, The Alexandra Murphy HHT Foundation aims to raise awareness and funding to help sufferers of HHT and, more specifically, Pulmonary AVMs.

Hereditary Haemorrhagic Telangiectasia is an inherited genetic disorder that affects the blood vessels. People with HHT have some blood vessels that have not developed properly and sometimes cause bleeding, known as arteriovenous malformations (AVMs). There is no cure for HHT, which has many complications - some of which are life-threatening - and treatment depends on the parts of the body that are affected by the condition.

All funds raised go to the UK’s leading HHT specialist, to help with research and treatment. By telling Alex’s story, we hope to help others affected, by showing how they can live full and enjoyable lives, and help train their bodies to cope as best as possible with their psychical condition.

We are a small family run charity, and very much appreciate your time and generosity.

You can find out more information on our website https://alexandramurphyhht.foundation/

Thank you!