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Alex's fundraiser for Ehlers-Danlos Society

Alex West is raising money for Ehlers-Danlos Society
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Glasgow Kiltwalk 2025 · 26 April 2025 to 27 April 2025 ·

The Ehlers-Danlos Society is dedicated to advancing and accelerating research and education in EDS and HSD. We support the development of effective and equitable EDS and HSD therapies and work collaboratively to improve the lives of individuals affected by EDS and HSD.

Story

I'm walking 14 miles in this year's Kiltwalk!

I have Ehlers-Danlos Syndrome, a genetic condition I was born with. There are 13 types of EDS, and I have the most common type, hypermobile EDS (hEDS).

EDS impacts every part of my life, causing challenges like joint subluxations (partial dislocations) and chronic pain, which affect how I approach physical activities like this charity walk. I also have other conditions secondary to EDS, which means I developed them as a result of the strain EDS puts on my body. I've had symptoms of these other conditions since I was just five years old.

By supporting the Ehlers-Danlos Society, you’ll help fund critical research, raise awareness, and improve resources for people living with all forms of EDS worldwide.

I've been unwell these past few years, to the point I could barely walk the length of myself. It feels only right to celebrate feeling better by walking a long way!

Donation summary

Total
£65.00
+ £12.50 Gift Aid
Online
£65.00
Offline
£0.00

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