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Jude and Ali's fundraiser for Foundation for Prader-Willi Research UK

Alexandra Muscovitch is raising money for Foundation for Prader-Willi Research UK
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One Small Step - Almond Family Pubs · 8 July 2023 ·

The aim of Foundation for Prader-Willi Research UK (FPWR UK is to overcome the challenges of Prader-Willi Syndrome (PWS) through advancing research. High-quality research leads to more effective treatments and a better quality of life. FPWR UK was founded in 2010 by parents of children with PWS.

Story

On Saturday the 8th July Jude and his Mum, alongside family and friends, will be walking 10 miles between Almond Family Pubs to raise money for the Foundation for Prader-Willi Research UK. This charity is close to our hearts as our cousin Bella was diagnosed with Prader-Willi Syndrome when she was a few months old. To help eliminate the challenges of PWS for all those affected, research is vital into this rare genetic disorder.

Some of the walk is pretty gruelling especially for short (Ali) and skinny (Jude) legs! Sadly, Jude doesn’t even get the promise of a pint at the end!

Any donations are gratefully received.

Much love x

https://www.fpwr.org/

Donation summary

Total
£1,050.00
+ £240.00 Gift Aid
Online
£1,050.00
Offline
£0.00

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