On Friday 24th April Oska, Alix and Teddy will be taking it in turns to bounce on Oskas trampoline throughout the day as part of a special fundraiser we will be streaming it across multiple platforms so you can follow along and show your support wherever you are.

We’re raising awareness and funds for SWAN UK, the only charity in the country dedicated to supporting people affected by a syndrome without a name (SWAN).

Oska has a diagnosis of SWAN, which means that, like many families, we may never receive a specific diagnosis. It’s an uncertain path, with very little information about what the future might hold.

There are around 6,000 people in the UK living with SWAN.

Each year, thousands more children are born with conditions so rare they remain undiagnosed, leaving families facing a future without clear answers or support.

SWAN UK is there to change that - offering guidance, community, and hope to families navigating the unknown.

SWAN UK supports families affected by a syndrome without a name (SWAN) - a genetic condition so rare it often remains undiagnosed.

SWAN UK's mission is to make sure that no family is left behind.