I will be running the Bristol half this year and thought it a great opportunity to raise some money for CDG UK.

My son, Fred, has PMM2 CDG, a rare genetic metabolic condition. This has caused many challenges for Fred such as speech delays and physical disability.

Being a parent of a child with a rare disease can be an extremely lonely experience. CDG UK are an amazing charity who connect families living with CDG as well as raise awareness and inform families about vital research.

By supporting my Bristol Half Marathon challenge, you’re helping families like mine feel less isolated and contributing to research that could change lives.

Every donation, no matter the size, makes a real difference. Thank you so much for supporting Fred and the wider CDG community.