My friend Sarah and I started marathon training very tentatively in January and now we are nearly run ready 🤣. My lovely mum has PSP and suggested I try to raise some pennies for the cause. I will be slow and certainly not breaking any records but if I can help to fund some research into this awful disease, I’ll be winning!!

PSPA (Progressive Supranuclear Palsy Association) is the UK’s leading centre of knowledge, experiences and support for people living with Progressive Supranuclear Palsy (PSP) and Corticobasal Degeneration (CBD) and their families. Our mission is to create a better future for everyone affected by PSP & CBD. We work to ensure the 10,000 people with PSP or CBD receive support that is coordinated, has continuity and is compassionate.

At the heart of the PSPA is a community of passionate individuals committed to making a difference. Our team works tirelessly to offer support services, educational programs, awareness campaigns, and fundraising initiatives that empower and inspire.