Help Us Support the Smith-Magenis Syndrome (SMS) Foundation UK

My son, Harvey, was diagnosed with Smith-Magenis Syndrome (SMS) after undergoing genetic testing following an emergency operation when he was three months old. The diagnosis was a turning point in my life, opening my eyes to the challenges and triumphs that come with individuals having this rare disability.

SMS is a complex and often misunderstood condition that affects every aspect of a person’s life. Since Harvey's diagnosis, I have embarked on a journey to learn everything I can about SMS, traveling to other countries to learn and have even connected with other families facing the same challenges. My goal has always been to ensure that Harvey can lead a fulfilling life within a supportive and understanding community.

The SMS Foundation UK has been a lifeline for us, providing the resources, support and advice needed during some of our most difficult times. Now, we want to give back by raising funds to help other families navigate their own SMS journeys.

My goal is to raise £500 for the SMS Foundation UK, but we can only achieve this with your help. Your donation, no matter how small, will make a significant difference in the lives of those affected by SMS. It will help fund research, provide essential resources to families, and raise awareness about this rare syndrome.

Harvey's story is just one of many, but together, we can ensure that every child and family living with SMS has the support they need. Your generosity will bring us one step closer to a world where every person with SMS can thrive.

Thank you from the bottom of my heart for your support.