Please sponsor me as I take on the Mummy Marathon this July. I will be walking 26.2 miles throughout the month of July in support of Mollie and all the other children affected by this degenerative disease.

Mollie is a true inspiration and holds a special place in my heart!

What is A-T?

A-T (Ataxia Telangiectasia) is a rare, genetic degenerative disease of childhood, which affects multiple systems of the human body.

Health progressively deteriorates causing an overall loss of coordination and muscle control. Children are usually confined to a wheelchair by the second decade of life (around the age of 10) and will need assistance with everyday tasks. Children often lose their ability to write, speech becomes slower or slurred and reading becomes problematic due to difficulty in eye movement control.

Many of the children are susceptible to recurring respiratory infections. A-T is also characterised by telangiectasias (widened, “spider” like veins), which often appear in the corners of the eyes. Due to their inability to respond properly to specific types of DNA lesions, A-T patients also exhibit extreme sensitivity to ionising radiation, such as X-rays.

Life span is shortened, usually by respiratory failure or cancer. A-T is life-limiting, with those affected generally living until their twenties. There is currently no cure for A-T and no treatments to slow down or stop the progression of this devastating disease.

I know times are tough but if you could find a spare £1 and help this amazing young lady I would be forever grateful.

Thank you so much for reading.

Amanda x