In May 2020 my daughter Isabelle was born, she had a number of health issues which prompted some genetic testing and later that year she was diagnosed with a very rare genetic condition called Mowat-Wilson syndrome. This causes many complex health conditions including global delay, intellectual disability, heart conditions, absent/limited speech and brain abnormalities to name a few.

One of the positives of the syndrome is our children can be very social and happy little people who deserve all the support and help they can get. There’s still so much research and awareness to be done around this condition as it often gets missed or miss diagnosed as something else. Which is why myself and Isabelle’s auntie Jennifer will be taking part in Hyrox Manchester in Jan 2024, an 8k run with a functional workout station every 1k!

Every penny counts especially because the Mowat-Wilson foundation is so small and every penny will be so helpful to research and educate others around the syndrome.

Thank you so much,

Amanda & Jennifer x