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Running for Tom: 10K for Brugada Research šŸ’™

Amy Lancett is raising money for The Tom Barrow Brugada Trust
In memory of Tom Barrow

MoRunning Cardiff Ā· 1 November 2026 Ā· Start fundraising for this event

The Tom Barrow Brugada Trust is a UK charity set up in memory of Tom Barrow, who tragically died in November 2023 from Brugada syndrome. Tom, a devoted father of three, passed away unexpectedly due to this little-known cardiac condition. The Trust’s mission is to fund and promote research, supporting medical teams—especially in Wales—to better understand, diagnose, and ultimately prevent Brugada syndrome and related cardiac arrhythmias. By raising funds and awareness, the Trust strives to save lives through early detection and treatment.

Story

I’ve been putting off sharing this because, frankly, I don’t know if I can actually do it šŸ˜‚ā€¦ but here goes. Once it’s out there, I’ll have to! 🫣

Back in January this year, I started Couch to 5K for what must be the millionth time in the last 10 years. I made it as far as March before my knees decided they’d had enough and I had to stop.

But in July, I restarted… and somehow, I actually made it to the end! #praisethelord šŸ™ŒšŸ»šŸ˜‚

Many of you will remember and have followed my journey from last year, when I swam across the Channel during the month of April. šŸŠšŸ»ā€ā™€ļø

I’d like to think that every year I’ll challenge myself to do something that scares me a little, in memory of Tom.

So… here I am. Signed up to run a 10K on 1st November.

And let’s be clear: I am SLOW. Like, REALLY slow. šŸŒšŸ˜‚ My brother-in-law genuinely thought my running pace was my walking pace.

But I’m hoping that over the next 4–5 weeks, I might surprise myself. šŸ˜…

Because ultimately, it isn’t about how fast I run. It’s about why I’m running.

THOMAS EDWARD JOHN BARROW šŸ’™

My only brother.

The boy wedged between four sisters.

A 38-year-old dad to three precious boys, husband to Anna, and dearly loved son and brother.

Tom’s life was tragically cut short in 2023 by a heart condition that very few people have even heard of - Brugada Syndrome.

Tom had no idea he had it, although he suspected something wasn’t right. It breaks my heart to think that he intuitively knew there was a problem, but no one was able to give him the answers he needed.

That should not be the case for anyone.

The Tom Barrow Brugada Trust was set up in his name to fund research into Brugada Syndrome and to educate medical professionals, with the hope that other families won’t have to endure the horror and life-changing loss that ours experienced.

I also want to shine a little light on something that isn’t always talked about as much - the loss of a sibling.

Losing Tom has changed my life in ways I could never have imagined. A brother is someone who has been there for your whole life, and losing him means losing not only the person you love, but all the years, memories and moments you thought you would have together.

There are so many people who have lost siblings, and I don’t think we always talk about that kind of grief enough.

So if you’re able to donate, however small, my family and I would be hugely grateful. šŸ’™

And if you can’t donate, sharing this page or simply cheering me on as I attempt to drag my very slow legs around 10K would mean the world! šŸ˜‚

I’M RUNNING FOR YOU, TOM. šŸ’™

For the research.

For awareness.

For our family.

And for you, always.

xx

Donation summary

Total
Ā£155.00
Online
Ā£155.00
Offline
Ā£0.00

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