Story
Thank you so much for visiting my JustGiving page.
On the 21st August 2025, my 2-year-old son was diagnosed with Moebius Syndrome — a very rare condition that affects only around 200 people in the UK. Moebius Syndrome is a congenital neurological disorder that causes facial paralysis and limits eye movement. This can mean being unable to smile, move the eyelids, or look from side to side, and it often makes speech and communication more difficult.
I’ve been lucky enough to secure a last-minute place in the Great North Run in Newcastle upon Tyne, and I’ll be running to raise vital funds and awareness. Any donation, no matter how small, would mean the world.
As a parent, I worry about the challenges my son may face — from low confidence and social isolation to misunderstandings, emotional struggles, and sadly, even the risk of bullying. By supporting this cause, you can help create more awareness, acceptance, and support for children like William.