Story
Thanks for taking the time to visit my JustGiving page.
Elizabeth was a lovely girl born with a terrible disease. With similar effects to epilepsy the disease onset occurs in the first year of life, followed by developmental delay with cognitive and behavioral dysfunction and substantially elevated risk of premature death. Elizabeth left us to be with Jesus in the early hours of 8th February 2024 aged just 17. Dravet's is not well known and more research is needed. The parents of children with the condition need support too.
I am now doing a fitness challenge of 20 minutes of physical activity for 20 days to raise more money.
Please give any amount. Thanks in advance.