Andy McKinney

Fundraiser for Dravet Syndrome UK in memory of Elizabeth

Fundraising for Dravet Syndrome UK
by 23 supporters
In memory of Elizabeth Hardy Leal
Dravet Syndrome UK

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RCN 1128289
We fund medical research & raise awareness to help families living with DravetSyndrome


Thanks for taking the time to visit my JustGiving page.

Elizabeth was a lovely girl born with a terrible disease. With similar effects to epilepsy the disease onset occurs in the first year of life, followed by developmental delay with cognitive and behavioral dysfunction and substantially elevated risk of premature death. Elizabeth left us to be with Jesus in the early hours of 8th February 2024 aged just 17. Dravet's is not well known and more research is needed. The parents of children with the condition need support too.

I am now doing a fitness challenge of 20 minutes of physical activity for 20 days to raise more money.

Please give any amount. Thanks in advance.

About the charity

Dravet Syndrome UK

Verified by JustGiving

RCN 1128289
Dravet Syndrome UK is dedicated to improving the lives of children and adults living with Dravet Syndrome through medical research, education and awareness and appropriate support.

Donation summary

Total raised
+ £117.00 Gift Aid
Online donations
Offline donations

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