Story
We are taking part in #WearPurpleForJIA to raise funds and awareness for the 10,000+ young people in the UK who have arthritis.
Juvenile idiopathic arthritis (JIA) is a debilitating condition that affects the joints and organs of young individuals, often severely limiting their mobility and independence. This heartbreaking reality can leave many
Heartbreakingly there is no cure for JIA
Give whatever you can today and #WearPurpleForJIA with us on [Friday 22nd May].Raising money this may for Juvenile idiopathic arthritis 💜
At 3 years old at christmas time, we noticed Ivy had been limping for about a week with no known reason. A lovely GP sent us to PAU where Ivy had bloods and an xray. We were then discharged with a twisted femur diagnosis. One week later I received a call from Morrsiton on call to say Ivy's antibody screen had come back positive. Soon after we met our wonderful paediatric consultant who knew instantly what it was.
As someone who works in the medical field I did not know children so young can get arthritis.
We've had a whirl wind of a year with up and down to cardiff,singleton and morriston. Steroid injections, knee aspirations, blood tests and now weekly injections at home. Not to mention 8 months of steroid eyedrops due to uveitis.
We are very luckly that at the moment it's only affecting Ivy's left knee and left eye. But it can go to any joint in the body which we are in constant worry. She's so little and doesnt really understand it all but just takes it like a champ.
Just wanted to raise some money for one of the charities that works so hard in researching this awful, rare disease. 💜
