Anne Kenyon

Anne Kenyon’s swim for Ehlers-Danlos Society

Fundraising for Ehlers-Danlos Society
£840
raised of £750 target
by 14 supporters
Donations cannot currently be made to this page
Boulters to Bray 2.8km Swim, 1 July 2023
We are driving forward Care, Access,Research, and Education, and are committed to changing lives of those impacted by EDS and HSD. We are asking a few of our key partners to rally their friends, family, and networks to support our work.

Story

May is the Ehlers-Danlos Syndromes (EDS) and Hypermobility Spectrum Disorders (HSD) awareness month and this year, I would like to raise money for The Ehlers-Danlos Society which does so much to help impacted individuals and their families by driving forward care, research and education into these debilitating, still poorly understood, often invisible and under-diagnosed conditions.

I spent nearly forty years dealing with a variety of strange and seemingly unrelated health issues before finding out that hypermobility can have a far greater effect on the body than simply being good at gymnastics!

People with EDS/HSD have lax connective tissue and, as this is present in every system in the body, the effects are widespread and varied, making it difficult for doctors to diagnose. Since there is a genetic component, whole families can be affected.

The Ehlers-Danlos Society‘s work in raising awareness, especially among medical professionals, is crucial if people are to be diagnosed and supported earlier.

On Saturday 1st July I will be taking part in the Boulters to Bray 2.8km swim. It’s the longest swim I’ll have done for quite a while but as it’s downstream I’m hoping it will be doable!

Any sponsorship you are able to give will be hugely appreciated.

About the campaign

We are driving forward Care, Access,Research, and Education, and are committed to changing lives of those impacted by EDS and HSD. We are asking a few of our key partners to rally their friends, family, and networks to support our work.

About the charity

Ehlers-Danlos Society

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Donation summary

Total raised
£840.00
Online donations
£840.00
Offline donations
£0.00

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