Tobyn was diagnosed with JIA and has faced many challenges already at only 3. His story started at around 11 months when he started to show signs of walking. Tobyn crawled when he was meant to and when he did he was off like a rocket. But very quickly things changed for Tobyn, we could see he was in pain when he put weight on his knees, he stopped crawling and cried so much. Next his wrist and elbows started to hurt, getting him dressed sometimes made me cry because I knew I was hurting him. It took us a long time to find out what was wrong with Tobyn, he was tested for so many scary things.

Tobyn had nearly a year of feeling better. And we hoped that that was that and he’d be ok. Unfortunately it wasn’t to be. Luckily the RVI were quick to help. He’s recently had his elbows and his knee injected with steroids under general anaesthetic, poor baby. This has given him some relief. He’s also started weekly methotrexate injections in hope of keeping things at bay. Tobyn is spending a lot of time at hospital again, monthly bloods, physio, consultant appointments and regular eye appointments, who knew that having this arthritis there is a strong possibility of him having something called uveitis so needs regular eye tests.

Mornings are still difficult for Tobyn, he wakes up grumpy most days, this is because he’s sore and his joints are stiff. He’s probably tired too, he wakes every night in the middle of the night crying because he has pains and needs a cuddle from his mummy or daddy.

Life isn’t all bad for Tobyn though, he’s got his three big brothers that love him and look after him when he needs it, he’s lucky to have them. Tobyn despite all of his difficulties loves playing and running around with friends. He goes to nursery. He’s a happy, funny little boy and we are extremely proud of him.

Tobyn isn’t alone in this, we’ve learned and seen there are lots of children who have JIA, and some who are much worse than he is, it’s so sad. I hope by sharing some of Tobyn’s story it’ll help you understand the difficulties and challenges children with JIA have. And if you can please donate, every little helps.

Thanks Beckie and Dean