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🛏️ BED for Severe M.E. - Supporting Research That Brings Hope
25% of people living with Myalgic Encephalomyelitis (M.E.) are severely affected. These individuals are often bedbound or completely housebound, facing a level of suffering that is rarely seen and even more rarely understood. Severe M.E. can involve paralysis, blackouts, tremors, stroke-like episodes, cardiac dysfunction, and coma-like states. Even chewing or swallowing can become impossible. Light, sound, and movement can worsen symptoms dramatically.
There is no cure, no effective treatment, and no NHS protocol for Severe M.E. But there is hope, and that’s why we’re fundraising for CureME.
CureME is at the forefront of participatory epidemiological, clinical and laboratory research into Myalgic Encephalomyelitis (ME/CFS) in the UK. Our research has focused on improving recognition, diagnosis and treatment of ME/CFS, and led to the creation of the UK’s first ME/CFS Biobank (UKMEB), now open to external researchers across the globe.
💙 Why BED?
For someone with Severe M.E., BED is everything. It’s not just a place to sleep, it’s where they eat, bathe, rest, and connect with the world (if stimulation is tolerated). M.E. causes Post-Exertional Malaise (PEM), a worsening of symptoms after even minimal activity. That means even sitting up or speaking can trigger a crash. BED becomes a sanctuary, a lifeline, and a place of survival.
We want to raise awareness of this reality, and raise funds for the research that could change it.
🔬 Why Cure M.E.?*
Cure M.E. is dedicated to uncovering the biological mechanisms behind M.E.. Their work is rigorous, compassionate, and globally respected. By supporting Cure M.E., you’re helping to build the evidence base that could lead to effective treatments, better care, and, one day, a cure.
🧦 How You Can Help
Our BED for Severe M.E. campaign has five components, and every donation helps us support research that could transform lives.
Whether you’ve:
- Worn your PJs to work 💤
- Joined our online PJ party 🎉
- Bought a badge to show your support 💙
- Or simply want to help fund research for those who can’t leave their bed, thank you. Your generosity helps us move closer to answers, dignity, and hope for the M.E. community.
Let’s make BED a symbol of care, compassion, and change.
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