Isabel Turk

Our "Gorgeous Girl," Isabel, was born in December 2003, was diagnosed with type 1 SMA at 5 weeks and died in June 2004, aged just 6 months.

One concise sentence, stark and factual; however, it could never convey the pain and suffering she endured, nor the heartbreak of family and friends, who were destined to observe and grieve helplessly over 23 years.

Laura and I were determined to fundraise to ensure that no child had to suffer needlessly or that their family and friends had to walk in our shoes.

Thankfully, our family, friends and a wider circle of generous people continue to support this amazing charity, bringing our dream closer to reality.

This time, our amazing friend, Ben Court, takes on the Herculean challenge of the London Marathon. The marathon will be the culmination of months of hard work and dedication. If that hard work resonates with you and with our aim to prevent another loss of a baby's life to SMA, ensuring that parents, siblings, family and friends do not have to suffer the devastation of losing a child, please support this incredible charity and Ben's sacrifice. Laura and I are forever in your debt.

SMA UK

Established for over 40 years, SMA UK is a charity that supports and campaigns. It advocates for everyone affected by Spinal Muscular Atrophy to access the best care, services, and treatments, and to benefit from continued research. We offer adults, young people, parents, relatives, and friends emotional support, practical advice, and guidance from our experienced team, along with reliable health and social care information about SMA. We also provide free multisensory toy packs for infants diagnosed with SMA.