Story

This year marks a significant milestone, a "big birthday," and to celebrate this special occasion, I am embracing a new challenge: raising funds for a little-known charity, Dravet Syndrome UK (www.dravet.org.uk). Dravet Syndrome is a rare and life-limiting genetic neurological condition that affects approximately 1 in 15,000 live births in the UK. This condition leads to treatment-resistant epilepsy and intellectual disabilities, along with a range of associated challenges such as autism, ADHD, and difficulties with speech, mobility, feeding, and sleep.
To honour this cause, I will be participating in "Every Day in May for Dravet 2025," where I will run, walk or swim 5k every single day throughout the month of May. That’s right—31 days of commitment to cover an impressive total of 155k (or about 99.2 miles—let's round it up to 100!). The best part? I will complete this challenge by my big birthday!
I aim to raise at least £500 for Dravet Syndrome UK to support their vital work in bringing hope to families affected by this condition through education, support, and medical research. To learn more about their incredible efforts, please visit www.dravet.org.uk. Your encouragement means the world to me as I embark on this journey; every bit of support helps keep me motivated through this significant challenge.
I kindly ask you to dig deep and contribute whatever you can—no donation is too small! Your generosity can make a tremendous difference in the lives of those living with Dravet Syndrome. Thank you for your unwavering support!
