PSPA is the only UK charity dedicated to creating a better future for everyone affected by Progressive Supranuclear Palsy and Corticobasal Degeneration.

April 26th 2026 will see me attempt my 21st London Marathon, despite being born with Dystonia (a brain related disability effecting the length, tightness and movement of all muscles in my right side which causes uncontrollable spasms at any time of day or night). My balance is a nightmare! So running is challenging.

PSPA (progressive Supernucleur Palsy) is a brain degenerating disease that eventually takes from the person any use of their faculties including swallowing, sight, eating and has a life span of 7 years maximum once diagnosed and is at present incurable. (Dystonia can be an early symptom but I am luck mine cannot develop as I was born with mine)

This year sees me running with my friend Pam, a bucket list challenge for Pam that she thought she would never get to do but she agreed to sign up to be my aid/helper on race day not only will he be helping me look after my disability and its limitations on my running, she will be having to stay at my pace !!!

For those who know me, PSPA is a cause very close to my heart for very personnel reasons, it has no cure and raising awareness of it is my aim to help find a cure so people are actually aware of what a devastating disease this is.

Yes I have a disability which makes my life difficult especially running and every years preparation for London is very Challenging but at least I get to live.

PSPA needs to find a Cure and awareness raised.

Please help us both if you can

Beccy and Pam

xx