This year my son and I will be attempting our hardest challenge yet. After the Thames path, Norfolk coastal path and last year's Tour du Mont Blanc we are heading back to Europe to hike the Alta Via 1 trail in the Italian Dolomites in August. The trail is about 70 miles, with about 7500meters of elevation gain and loss, with alot of exposure and steep, loose, rocky terrain.

Not only that but this year my wife, Becky is coming with us, after me and the boy convinced her it was a good idea.

Becky hates hiking up big hills so this is a huge undertaking for her. She won't be doing the whole trail, missing the first two days, and none of us are promising to finish the rest...anything can happen in the mountains etc. but we do promise to give it our best shot, and our training has already started.

The UK Rett Syndrome community is at a pivotal moment at the moment with two clinical trials of gene therapies underway.

Much is required of our small, rare disease organisation at this time. At Reverse Rett, we are packing a mighty punch in accelerating disease-modifying treatments for Rett syndrome but we need your support to keep our work going.