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The boys run for EB awareness

Adam Fortune is raising money for DEBRA

Butterfly Run 2026 · 4 October 2026 · Start fundraising for this event

DEBRA is the national charity that supports individuals and families affected by Epidermolysis Bullosa (EB) – a painful genetic skin blistering condition which, in the worst cases, can be fatal. We fund pioneering research and provide care and support to individuals and families living with EB.

Story

PLEASE NOTE: A CHARITY FOOTBALL MATCH IS BEING HELD FUNDRAISING FOR DEBRA CHARITY - SEPTEMBER 5TH, BALDOCK ARENA, 3PM KICK OFF - BETWEEN LOCAL TEAMS AC MALONES AND BTG HERTS. PLEASE COME AND SHOW YOUR SUPPORT.

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Unfortunately many people are unaware of Epidermolysis Bullosa (EB) – a potentially fatal skin condition that causes constant pain due to unstoppable internal and external blistering.

That was the case for many of the boys in our friend group until Lewis and Ciara gave birth to their beautiful little boy Ralph who was soon after diagnosed with EB. Starting their journey in to what an EB diagnosis will mean for them and Ralph’s life the team at DEBRA - the national charity supporting those directly affected by EB providing lifelong support - are their to help guide people and families.

In an effort to help raise awareness and support DEBRA, the boys will all be participating in the annual Butterfly 10k Run so if you would like to support Lewis, Adam, Connor, James, Calvin, Sam, Jack, Will and Bradley in this effort and more importantly help support people and families affected by EB, please consider donating. Thank you.

Please also considering signing the petition to push the government to increase funding for research in to conditions like ralphs: https://petition.parliament.uk/petitions/775393

Donation summary

Total
£1,480.00
+ £197.50 Gift Aid
Online
£1,480.00
Offline
£0.00

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