We are taking part in Dravet Syndrome UK's Awesome Abseil on 16th September 2023 and we need your support!

Hi all, as you probably know Kerry and I will be abseiling from the top of Anfield Stadium home of LFC ( Liverpool FC ), raising funds for Dravet Syndrome UK.

On the 1st April 2019 Kerry and I welcomed our beautiful baby boy into our lives. However life threw a curveball at us when at 7 months old our gorgeous little man suffered a prolonged epileptic seizure. Little did we know what the future had in store for our family.

At 3 years old Leon was diagnosed with Dravet Syndrome. We grieved for the life we had expected but are now focusing on giving our little warrior the best life we can.

Dravet Syndrome is a rare, life-long and life-limiting neurological condition, affecting one in every 15,000 people in the UK. As well as severe, difficult-to-control seizures, Dravet Syndrome encompasses intellectual disability and a spectrum of associated conditions (known as comorbidities), which may include autism, ADHD, behaviours that challenge and difficulties with speech, mobility, feeding and sleep. Every child or adult with Dravet Syndrome is different, with some affected more severely than others, or with a different emphasis across symptoms and comorbidities. But for all, the condition is complex and can be highly unpredictable.

Kerry and I are aiming to raise over £1000 for Dravet Syndrome UK, to support their vital work in bringing hope to families living with Dravet Syndrome through support, education and medical research. To find out more visit www.dravet.org.uk.

All donations are gratefully received and make such a huge difference. Your support will spur us on throughout the challenge - anything that can help us to feel more brave is welcome!