HI IM CAROLE RAISING MONEY FOR A FANTASTIC CHARITY CLOSE TO MY FAMILYS HEART❤️

PLEASE TAKE A MINUTE TO READ MY NIECE MONROE'S AMAZING JOURNEY. ❤️

During pregnancy Monroes parents received the news at their 20 weeks scan that Monroe had a Congenital Heart Defect, luckily due to the work Tiny Tickers do the sonographer at that scan was able to pick up that Monroe had a hole in her heart, from there Monroes parents were sent to the fetal medicine unit for further scans and tests where they received the news of Monroes diagnosis, and got passed information for Tiny Tickers to receive support and allow them to read story's to help prepare for the birth of Monroe. Monroe was born with complete AVSD with leaks on both valves, for the first 4 months of her life she didn't display any symptoms of her congenital heart defect, she was feeding and gaining weight like any other baby and was just attending routine appointments.

At 4 months Monroe contracted bronchiolitis and RSV, she had a short hospital stay requiring a small amount of oxygen, from this point on Monroe never recovered from the bronchiolitis and a few weeks later ended up back in hospital as her feeding had stopped and her weight gain had stopped, she became too breathless to feed, and the majority of her day was spent sleeping along side with a continuous cough, on her second admission to hospital she ended up requiring a NG tube due to her weight and lack of energy to feed and was placed on diuretics. Following a cardiac review Monroe got presented to the surgeons at Alder Hey for a date for her surgery, they wanted her in for her repair within 4 weeks, due to declinein her, she wasn't going to get any better until the repair was done. Monroe got discharged home to wait for her surgery, a few days later when she was sleeping her oxygen levels started to drop to the 70s and she got readmitted to hospital and put in ICU on high flo then on to CPAP, this was due to the severity of her work of breathing, during this time she was also put on a medication called milrinone to help with her heart function, Monroe received her surgery date which was just less than 2 weeks away, as Monroe needed to rest and recover as much as possible for her surgery, Monroe stayed in ICU until her repair.

Monroe had her a full repair done on 14th January 2025, the surgery was successful, In just under 2 weeks of her surgery she was home, on diuretics and her NG tube, but the cardiac team was happy with her, she still has mild leaks on her valves however this is something that is being monitored and at the moment isn't causing an issues. Fast forward 9 weeks post op, Monroe is now NG free and medication free, finally gaining weight and is a happy baby who is full of smiles and colour.

Thanks to the help of tiny tickers Monroes parents were able to speak to other parents in similar situations and were reassured in all situations.

PLEASE DONATE AS MUCH OR AS LITTLE AS YOU LIKE TO HELP THIS AMAZING CHARITY!!

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WISH ME LUCK.....

IF YOUVE MADE IT THIS FAR....

THANK YOU 🫶🏼🙏

A baby is born with a serious heart condition every two hours in the UK and despite congenital heart disease being one of the biggest killers of infants, only around half of congenital heart defects are picked up during routine prenatal scanning.

With your help we can provide a safety net for the 1,000 babies each year that leave hospital with their heart defect undetected, increasing detection rates, improving a baby’s chances of survival and long-term quality of life.