Alex's Wish has a mission to eradicate Duchenne Muscular Dystrophy (DMD). Duchenne which affects 1 in every 3,500 boys born. DMD is a devastating aggressive fatal muscle wasting disease which leaves children completely paralysed by late teens.
Duchenne is caused by a mutation on the X chromosome, boys are born with the condition and it can affect any family. Boys are missing a vital protein and as a result every single muscle in their body is destroyed. It is 100% fatal and most boys are only expected to live until their mid-twenties due to heart and respiratory complications.
Alexs Wish founder Emma Hallam set-up the charity shortly after being told not enough funding is going into research to bring about effective treatments to help delay symptoms.
They alongside other UK charities are making huge strides and now for the first time in history, this generation could be either the last to die or the first to survive this devastating illness.