I will be walking a marathon for Annabelle's Challenge for vascular ehlers danlos syndrome and the RNLI . Me and Harry from Injury and Sports Therapy will be walking from Donna Nook to Skegness its roughly 28 miles .

I myself have vascular ehlers danlos syndrome . This year I turned 40 which is a huge privilege and wanted to do another big fundraiser after a few years off doing big stuff due to ill health. So ive stand up paddled boarded 32 miles in a day quite a few times and now im stepping it up by walking a marathon , I struggle with walking so I may have to do this over 2 days the first day being 27th june . Hoping to do it in one day though.

An

Annabelle's Challenge is the leading charity for vascular Ehlers-Danlos syndrome in the UK. At the heart of the charity is Annabelle, a brave little girl from Bury who is the inspiration behind our challenge to raise awareness and support for patients and families affected by vascular EDS.

Vascular EDS is a life threatening connective tissue disorder that affects all tissues, arteries and internal organs making them extremely fragile. Patients are at risk of sudden arterial or organ rupture.