This year I'm taking part in Every Day in May 4 Dravet - where I'll cover 5km every single day throughout the month of May. That's a huge 155km in total 😬😴😴

Most of you know we had a pretty awful year last year with seizures, probably the worst since her early years. We've now been on this Dravet journey for almost 10 years. 10 years of seizures, intensive care admissions, countless EEGs, lumbar punctures and MRIs. Enough blood tests to last a life time, more medication then I care to remember and surgery in 2022.. and not forgetting the impact it has on our every day life.

I'm aiming to raise £450 for Dravet Syndrome UK, to support their vital work in bringing hope to families like ours living with Dravet Syndrome through support, education and medical research. To find out more about their work, visit www.dravet.org.uk.

Ill be aiming to run some of this challenge so those that know me knows that probably won't end well 🤣🤦‍♀️ I'm going to need all the support and encouragement I can get to keep me going through this challenge so please dig deep to spur me on. All donations, no matter how big or small, are greatly appreciated and make such a huge difference. Thanks for your support!

FOR SCARLETT AND ALL OUR WARRIORS 💜