Support Team CAUK

🏃‍🦋On Sunday 5th October 2025, the cavernoma community are coming together to take part in the Butterfly Run at Queen Elizabeth Olympic Park in London - a special event organised by Cure EB bringing together rare disease charities to raise vital funds and awareness

Open to all ages and abilities, the Butterfly Run is a fun, inclusive event with a serious purpose - to shine a light on conditions that are often overlooked, including cavernoma.

Why Your Support Matters

By donating to Team CAUK, you’ll help to:

📢 Raise awareness of cavernoma

🧪 Fund research into better treatments and a cure

💬 Provide life-changing support to people affected by the condition

Every donation takes us one step closer to change. Whether you’re sponsoring a loved one, sharing our story or giving what you can - thank you for being part of it 🫶

What is a Cavernoma?

A cavernoma is a cluster of abnormal blood vessels in the brain or spinal cord, often described as looking like a raspberry 🍓. Their thin, leaky walls can bleed without warning, at any age. Around 1 in 625 people have a cavernoma, and 1 in 2,700 experience symptoms such as:

🩸 Brain haemorrhages

⚡ Seizures

🧍‍♀️ Neurological problems

There’s currently no cure. Treatment options are limited to monitoring, neurosurgery or stereotactic radiosurgery, and that’s why your support matters so much.

About Cavernoma Alliance UK (CAUK)

Cavernoma Alliance UK was founded by Dr Ian Stuart after a sudden cavernoma bleed changed his life. What began as a small helpline in Ian’s bedroom is now a national charity supporting over 4,000 people across the UK. Our mission is to:

🔬 Fund research to find a cure

📚 Provide trusted, accessible information

🤝 Offer connection, understanding and support when it’s needed most

To find out more, visit www.cavernoma.org.uk