Story
The Lily Foundation was founded in Lily's memory, having lost her battle to Mitochondrial Disease at just eight months old. The charity aims to give hope, answers and support to the many other children and families that face the challenges of this disease today. Did you know every day in the UK a baby is born who will develop Mitochondrial Disease! There is no cure for this disease which is for many, debilitating and life limiting. Please stand with us and fight Mitochondrial Disease and fight for hope. I am running 26.2 miles ...... please donate if you can.
On a more personal note I’m doing this for Esme my friends daughter who has a condition called Leigh’s disease which is a rare form of mitochondrial disease. This amazing charity helps families like them whilst funding research and hopefully one day a cure!!! I’m doing this as a way of showing my support to an amazing family who I’m in absolute awe of! Esme is such a beautiful young lady who has such an amazing support network and deserves the world and more xxx