Story
Me and my family are in total awe of Jess, Joe and Felix and love them so much and wanted to celebrate them and what Jess is doing running the London Marathon for her boy. We are having a bake sale and trying to achieve the 26.2 miles as a team on the day to show solidarity to Jess for the Marathon. This amazing charity is dedicated to fighting mitochondrial disease - a cause that’s extremely close to our hearts.
Jess’s son Felix, was tragically diagnosed with Leigh’s Syndrome at just six months old. Felix lives with this extremely rare mitochondrial condition that affects his every day life. It’s a debilitating, life limiting disease of which there is currently no cure.
Every donation to the Lily Foundation brings us closer to better treatments, more research and hope for a brighter future. The charity have already been a huge comfort to the family, providing invaluable help and continued support.
