Story
Hogys Hikers take on the West Highland way to raise awareness of Amyloidosis.
Three years ago, the world as our family once knew it, changed forever. My dad, Eugene Hogan (Hogy) was working normally one day, and the very next day was told he had kidney failure caused by a rare blood condition, called Amyloidosis. We will never forget when he said 'there is no cure. However, it is treatable. We were numb and distressed at the same time. Only 1% of the population has it and we all said, " What is Amyloidosis ...never heard of it" This is the very reason why, as Hogys Hikers we want to raise awareness. Doing everything, we can in developing early diagnosis and by doing so, prevent major organ failure. Our dad is fighting hard, getting dialysis treatment along with Amyloidosis treatments. We aim to raise money for more research to be carried out and give everyone affected a fighting chance of some sort of life while helping those around them to support their loved ones on this toughest of journeys. Most importantly ensure they don't have to do it alone.
You CAN make a difference!! Thank you so much.
Amyloidosis is a rare disease caused by damaging build up of abnormal protein fibres, called amyloid, within the tissues and organs. Amyloidosis can affect any part of the body and lead to life threatening organ failure. It causes the death of about one person in every thousand and there are about 6,000 cases in the UK at any time.
Donations to the Amyloidosis Research Fund within the Royal Free Charity supports the research, development and patients of the UK NHS National Amyloidosis Centre (NAC) at the Royal Free Hospital. The Centre, established in 1999, is funded directly by NHS Specialised Services to provide diagnostic and management advisory services for all UK amyloidosis patients.
Gift Aid supports the Royal Free Charity's full range of vital support services for staff and patients across the Royal Free London NHS Foundation Trust, as well as supporting research and innovation.
