Story
Duchenne Muscular Dystrophy (DMD) is a rare progressive disease that is often diagnosed in early childhood and leads to considerably reduced life expectancy.
It is usually noticeable between 1 and 3 years of age and as children grow they may have difficulty walking, standing up, learn to speak later than usual, be unable to climb the stairs without may have behavioural or learning difficulties.
By their late-teens or early 20s, young adults with DMD may start to have breathing problems. The condition can also affect the muscle tissue between the ribs and the diaphragm.
Once the heart and respiratory muscles are damaged, DMD becomes life-threatening. With medical care, most people with DMD die from heart or respiratory failure before or during their 30s.
There's currently no cure for muscular dystrophy. Our aim is to find the most effective way to improve the quality of life for sufferers of this life-threatening disease.
Please help us to help them . . . thank you.