My name is Chloe and I will celebrate my 21st Birthday in August 2026.

I have a very complex medical history which started around the age of 18 months old and has more or less got worse since then having spent a large portion of my life in hospital, with some lengthy admissions of over a year!

My complexities include

1. Brain Stem Tumour (monitored)

2. Hydrocephalus (VP Shunt Fitted)

Registered Blind (since removal of Brain Tumour in 2016)

3. Hearing issues (wears 2 hearing aids)

4. Wheelchair user (neuropathy - loss of use of legs)

5. Ileostomy (large bowel doesn’t function)

6. Hickman Line (TPN - all nutrition through tube into heart)

7. Jejunostomy - tube into lower bowel to administer meds)

8. Nuerofibromatosis Type 1 (NF1)

Clearly all of the above has had a dramatic affect on my life and as a consequence of the above I have found i am constantly written off at nearly every turn but despite all I suffer, I try to never let things get me down and always seek to find the positives in all situations I find myself in. Being medically complex is not fun by any stretch of the imagination, but I have learnt so much, not only about myself, but about my conditions and ultimately how I might use that knowledge to help others.

Whenever possible, I like to help others who are less fortunate than me and over the last 10 years have raised around £50,000 for charities such as The Brain Tumour Charity, Childhood Tumour Trust as well as various wards at QMC Hospital - some of which has been covered by the local press and BBC Television.

I am organising a Charity Ball which will take place once again at https://www.renaissance-kelham.com/ who are supporting us for the 3rd time on Saturday 26th September 2026 during which we are holding an Auction & Raffle

Funds raised are in aid of -

https://www.make-a-wish.org.uk

Make-A-Wish® UK grant life-changing wishes for thousands of critically ill children across the UK. Sadly, the number of wish enquiries from seriously ill children with less than a year to live is rising fast. They need help to meet this urgent demand now - before it’s too late. For families with critically ill children, every day counts. Your support has the power to make a wish come true for a critically ill child, allowing families to create lasting memories that they will treasure forever – no matter what the future holds.