Support Louis and Raise Awareness for MPS2

100 days of 5k running · 14 December 2024
Thanks for taking the time to visit my JustGiving page.
I'm raising money and awareness for MPS2 (Hunter Syndrome), a rare and life-threatening genetic disorder that affects my 2-year-old son, Louis. He has recently undergone a bone marrow transplant, donated by his sister Olivia, which is his best chance to live beyond his teenage years.
To support Louis and other families impacted by MPS2, I am running 5km every day for 100 days.
MPS2 is a rare condition that affects just 1 in 100,000 to 150,000 males. It occurs when the body lacks an enzyme needed to break down complex sugars, leading to severe health issues, including organ damage, developmental delays, and mobility challenges. The impact on families is profound, as the disease requires constant medical care, specialised treatment, and long-term support.
Please donate to help us raise awareness, support medical research, and give hope to families like ours.
Charities pay a small fee for our service. Learn more about fees