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"You are one in a million! Well if you're affected by Angelman Syndrome you're more list one in twenty thousand - but you're in good company"
On the 2nd September 2023 at 14:00
A match to change lives of the many"
Old Grammarians & Finedon Volta (coaches and parents) vs Northants Fundamental Football Club (coaches and parents) in aid of charity.
Three clubs, one purpose - TO HELP OTHERS BEYOND THE FIELD OF PLAY!
Why not come along from 10:30am and make a day of it at Old Grammarians, Sywell Road, Wellingborough NN8 6BS. Fundamental teams will play charity games in the morning too with their MJPL squads.
Free parking and entry with refreshments, bar and more!
Angelman Syndrome (AS) is a rare neurological disorder affecting around 1:20,000 births.
It usually occurs somewhere between 9 months and 6 years, the current average is approx. 18 months.
In most cases, tests are carried out due to missed developmental milestones, although early onset of seizures or other medical complications can lead to an earlier diagnosis.
Consistent (100% of cases)
- Developmental delay, functionally severe
- Minimal or no use of words; receptive and non-verbal communication skills are higher than verbal ones
- Movement or balance disorder (ataxia), usually a wide legged stiff gait and/or tremulous movement of limbs
- Behavioural uniqueness: any combination of frequent laughter/smiling; apparent happy demeanour; easily excitable personality, often with hand flapping movements; short attention span; increased sociability
Angelman UK is a volunteer based charity that focuses among other things on trying to find a cure for this disease.
For further information on the great work done by these special volunteers